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Introductions: Pacemaker isn't all its cracked up to be?
I am new to this discussion group so hi there.
I have decided to write a post because I feel sad. I have been having symptoms of heart related issues for 18 months now, been through many hurdles but I have finally been diagnosed with multiple heart issues, Sinus node dysfunction (predominately brady but also tachy and atrial standstill), Right bundle branch block, frequent ectopic beats due the arrhythmia etc. Basically, my heart is doing its own thing and dancing to its own tune.
Unfortunately, the Doctors still don't know what they are dealing with as my heart muscle is normal and my lamin gene is normal (so no heart muscle disease waiting in the wings) so it’s a bit of a mystery why, at 40 my heart doesn't work properly. There appears to be a genetic element to this as my Mum and sister have similar arrhythmia but are not as affected as me and have never has symptoms.
The reason I am sad is that two weeks ago I had a pacemaker fitted to help with my bradycardia as I'm often in the 40s BPM and was causing dizzy spells and palpitations. I had focused on this implant to help "fix" me. I think I built it up in my mind as something it wasn't if I'm honest. In the last two weeks, I have found that I can feel my pacemaker working, it feels like ectopic beats but a pinching unpleasant feeling, breathlessness and fatigue. I've been trying to go for walks to get my fitness back but feel dizzy and breathless after a slow mile. It means I'm more aware than ever of my heart beat and my heart issues. Rather than "fix" me it has brought my anxiety back with a vengeance. I feel worse than before.
Can anyone can reassure me that it’s OK to feel weird beats/twinges after a pacemaker implant. I'm hoping this is just a case of waiting until it settles down. Did anyone else feel tired and breathless? Is this something that can be adjusted by a pacemaker technician? Any help/advice from anyone who also felt "worse" before they felt better would be gratefully received.